6th Orphan Drugs and Rare Diseases Europe 2017 (description)


Category:Health & Wellness
Address:Crowne Plaza Berlin, Potsdamer Platz, Hallesche St Berlin, , Germany 10963
Event dates:5/15/2017 - 5/16/2017 (This event has already taken place)
Event web site:
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Topics to be Covered:

  • Aegerion Pharmaceuticals, Institute of Pharmaceutical Research and Technology, Therachon AG, Novo Nordisk, Orphan Europe, SYMPTOMA, Alexion Pharma GmbH, ATAXIA UK and many more
  • Science, Health and Medicine, Pharmaceuticals
Organizer phone:02078276012
Offering type:Conference
Event frequency:Never
First Meeting:
Total events:
Est. attendance:
Target audience:Any
Other target audiences:
Host Sponsor:SMi Group
Est. # of exhibitors:
Currency:British Pounds
CE Credits:
Organizer URL


SMi's 6th annual Orphan Drugs and Rare Diseases event will be taking place in Europe's largest pharmaceutical market, Berlin on 15th - 16th May 2017.

Rare diseases have long been under researched, with many unaware that such conditions even existed. However recent advancements within the orphan drugs landscape has resulted in a significant growth, with the market expected to reach a record breaking $191 billion by 2019.  Conversely, there cannot be success without challenges.

With Germany currently possessing one of the toughest pricing mechanisms and policies in Europe, this two day conference will endeavor to establish an interactive platform exploring how payers, pharma, biotech and patient organisations are preparing to participate and leverage the rapidly growing orphan drugs and rare diseases market.

Massimo Bertelli, Country Manager, Aegerion Pharmaceuticals
Alastair Kent, Market Research Manager, Institute of Pharmaceutical Research and Technology
Richard Porter, Chief Operating Officer, Therachon AG
Peter Ramge, Senior Global Product Manager, Novo Nordisk
Tony Zbeidy, General Manager Middle East and North Africa, Orphan Europe
Jama Nateqi, Co-Founder, SYMPTOMA
Cecile De Coster, Associate Directory, Regulatory Affairs, Alexion Pharma GmbH  
Carol McCudden, Patient Ambassador, ATAXIA UK

Exchange knowledge and best practices on all relevant issues related to the rare disease environment
Learn strategies on defending the pricing of orphan products and how to establish a foundation for reimbursement
Hear Alexion discuss criteria, comparison and case studies for US and EU regulatory landscapes
Circulate the most relevant findings within the rare disease environment to all relevant stakeholders
Listen to global case studies from Aegerion and Orphan Europe
Discover a new business model for developing rare diseases treatments    

Register at


8:30 am - 5:30 pm

Registration Fee Details:

Book by 31 Jan: GBP 1099
Book 28 Feb: GBP 1299
Book 31 Mar: GBP 1399
Standard Price: GBP 1499

Other items that tuition includes:

Travel and hotel arrangements:

Contact Person:Kyra
Organizer State/Province: (Outside US)
Organizer CountryData not provided
Organizer Phone02078276012
Structural makeupData not provided
Host Sponsor; Other SponsorsSMi Group
Event sold out?No
Multiple locations or dates?No
Statistics available for most recent event held in:NA
Average number in event attendance of:
Number in attendance of:
Target BoundariesLocal
Is Registration contact information the same as Organizer Contact above?Yes
Web Page
Can one register for your CE on your web site?NA
Can registration be made by snail (regular) mail?Yes
Online housing reservations: 
Do you have additional written or AV materials for sale?No
If so, are they available for non-attendees as well as those attending?NA
Is full tuition necessary to ensure registration?No
Will there be shuttle service available?NA

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